If Something's Not Working, Change It

Oh my gosh, I haven't posted in a really long time! Is Blogger even a valid blog platform anymore? Anyhoo, I thought I'd dust off the old keyboard and finish a post I had started to write way back in December of 2017. Over two years ago!

First I'd like to explain the title of this post. This is courtesy of my wise mama Barb. She has this knack of finding solutions to problems with ease, almost like she has an otherworldly insight into life’s problems. Anytime I bring an issue to her attention, without hesitation she will have an idea. It's always something simple and practical. One of her most common answers? "If something's not working, change it".

I have utilized this advice many times over the years. When Ellie’s therapies were beginning to be too much for us, we opted to take the summers off. Therapy-free summers were renamed "real life therapy", and we have not looked back. We actually see huge gains in Ellie's development during these breaks. When my corporate job was overwhelming, my mom suggested working 4 days instead of 5. I asked my boss, and after some planning and rearranging I was able to have Fridays off. It was one of the best decisions I have ever made for myself! And since I wrote this post, I have quit corporate life and joined Jesse at Stafford Beverage selling booze! What a huge change for me, but a good one. I'm still adjusting to this new role and am finally settling in. Being home at the end of the day to get the kids off the bus has been the biggest bonus with this change. I am so grateful.

The whole point I'm trying to make, is that when you find yourself stuck in a rut, feeling down, and as if things are no longer working, take a step back and make a change. Try talking it out with the ones you love, lean on your mom, mother-in-law, husband, or best friend. Talking it out will help bring out alternative solutions to the surface. And hey, if it doesn't work that is OK too. You can just move on and try something different.

But that brings me to the reason I wrote this post in the first place. Sometimes, something isn’t working right before your eyes and you don’t even realize it. Like the time we found the note in Luke’s backpack. The guilt-inducing, I seriously suck as a mom note. I was sucker-punched, right in my guts.

It was after dinner one cold night in December in 2017. Jesse and I were cleaning out the kid's backpacks, and he happened to flip through one of Luke’s notebooks. Doodles filled the pages, Luke’s signature unicorns, detailed eyeballs and other colorful creative creatures. I like to think of this moment as a little nudge from the universe, because I’m usually the one who empties backpacks. But on this night, Jesse took on the job but he happened to flip through Luke's notebook, something I wouldn't have done. He handed the little notebook to me and nodded as if to say "check this out" with a concerned look on his face.

In Luke’s cute little handwriting was an “attention chart”. He had drawn a pie chart where he carefully outlined how much attention each of our kids receive. Luke: 25%, Will: 35%, Ellie: 50%. That equals 110%, not too shabby, eh? In all seriousness, I felt terrible when I read it. Absolutely terrible.

"Attention Chart"

I immediately called my mom. You see, I grew up with 6 brothers and over 100 foster kids in our home. Why did I not feel deprived for attention as a kid? I needed to know what the heck was I doing wrong, and how to fix it. I was crushed. She reminded me of our “hooky days”. Ahh, yes, hooky days!!! One of my most cherished memories! My mom would let me skip school and we’d spend the day just the two of us doing whatever I wanted. This usually would include trips to the mall to buy cassette singles and acid washed jeans. It was amazing and memorable.

After I got off the phone with my mom I excitedly asked Luke his thoughts “hey would you want to skip school and take a hooky day with me?” He was thrilled. “Heck yes!" He said. "Can Grandma come? Can we go to Walmart and Chipotle?” So that’s what we did. We had a blast, we found some fun things for his art desk. We went to Walmart, and Goodwill. We took our time eating lunch at Chipotle, and didn't rush like usual. We had the best day ever.

Hooky Day 2017

And now it is two years later. Today Luke took his 3rd hooky day since I originally found the attention chart! Each of our kids get one day during the school year to take a day just for themselves and we do whatever they want. I love it just as much as they do. But man! Sometimes life kicks you in the nuts with an attention chart and it requires change to be made. I must say I'm glad we found that chart Luke drew and that we could openly talk about it with him. Today was so fun, can you guess where we went? Walmart and Chipotle, and TJ Maxx as well. We rushed home and Grandma helped get his room all decked out just the way he wanted it. It was the best day ever. :)

New bedding and loving it!

Hooky Day 2019

Oh, and I had another realization through all of this; my mom and I are still taking hooky days together. Every year on the day of our birthdays we go shopping and out to lunch. We always get a cocktail with our lunch and we have a blast together. This year is her big 80th birthday so we are taking a hooky weekend to Utah together. I cannot WAIT!

I wonder if my kids will still want to take hooky days with me when we are older? I sure hope so.

Hooky bday with Mama

Is there something in your life that may not be working? Take a step back and look at your situation. Even the smallest change can make an impact. Think of my mom’s words next time you are stressing out, "if something’s not working, change it”. Try it, you'll see. And you'll laugh at how simple it is. Thanks mama Barb for always having the best advice.

For this week's post I'm choosing a song that reminds me of my kids, because I'm a total sap for mushy love songs. 

Little Hands - Inland Sky

Keep Your Eyes Open and Your Mouth Shut

On Saturday night Jesse and I took the kids out to dinner. As we sat there sipping our drinks and waiting for our food, a familiar song started to play. I pointed up and smiled at Jess, and he winked back at me with understanding. "Knocking on Heaven's Door" was playing. Although Jesse never met my dad, he knows when I have these little moments of recognition, or "woo-wooness" as we like to call it. I'm lucky that over time he has also come to appreciate these little winks almost as much as I do.
"It doesn't surprise me he's playing songs for me" I said. "I feel him around a lot lately... 20 years on Monday". Then Luke mentioned "mom Popeye visited me at school last week". I questioned what he meant. "An eagle flew over during recess, it was pretty cool" he explained. That story lead me to retell how the eagle flew over during our wedding vows. And about the time my best friend Candice and I were visiting my dad's grave. We were talking about my dad and the eagle connection and an eagle flew right over us. We squealed with wonder and nervousness, both covered in goosebumps. This eagle phenomenon has happened a lot over the years, and we always say "hi dad" when we see one. 

I then told another story to Jesse and the kids, a story my brother recently shared with me. It was April 16, 1987 and my brother Kevin had just enlisted in the Army. Upon leaving for basic training my dad wished him well with these wise words...

"Keep your eyes open and your mouth shut."
It was advice that my brother would reference often as his Army career progressed and as he entered adulthood. He still uses my dad's advice to this day.

Fast forward 11 years, on April 16th 1998. Kevin was at work and my dad's wise words popped into his mind. Out loud he said "keep your eyes open and your mouth shut". "Huh?" his coworker looked at him confused. "My dad said that to me 11 years ago today, I need to go see him." He packed up and headed out for the 45 minute drive to my parents house.

When Kevin arrived to my mom and dad's that evening, I was already there. I had just returned from a beach trip with my boyfriend. At 19, the last thing I wanted to do on a Thursday night was see my parents, but my boyfriend insisted. My dad had been battling his second round of cancer and had not been feeling well. To see him this way was difficult for me and my selfish teenage self was not feeling up for a visit. 

That night my dad passed away. He had been sick but looked good, so we were all blindsided by how fast it happened. My brother Kevin and I were there with my mom when he took his last breath. That moment changed me forever. It also instilled a belief that there is more to life than just our time here on earth. I saw his face when my mom told him it was OK to go, and to go be with my Grandma Hattie. His face washed over with peace, and I knew then that heaven exists. He was welcomed with love and we all saw it.

My loving, funny, tough as nails handsome teddy bear dad has now been gone for longer than I knew him. That is hard to quantify in my brain. He is still around us every day, his memory is alive and his essence lives on. I see him in my brothers, and now in my own children.

What his leaving did teach me is that life does go on even after a painful and unimaginable loss. It doesn't mean I don't miss him any less, but the sharp sadness does fade as time goes on.  Life will never be the same without him, but it is still an amazing and happy life.

As I get older and my children grow, I know I'll continue to watch how my dad lives on in them. Will's smart ass wit and cop brain could not have come from anywhere else. My dad wasn't a fabulous artist but his creativity was unlike any other, and Luke's creativity had to come from my dad. His artistic ability is from Jesse though, that's for sure. And Ellie, oh little Ellie. I was told once that she was sent here by my dad to heal my heart. To make that statement even more unbelievable, I have a blog post titled "Ellie's Healing Hearts" that I have yet to share. It's a long and painful story and I hope someday I'll have the courage to hit "publish". 
Ellie is now 5 and she still talks about Popeye. She tells me all kinds of things, how he's at work, or over at Grandma's house. He tends to visit her at night around bedtime. As creepy as this may sound to some, I believe it to be true. All three of my kids did this with him. The boys grew out of it around age 3, but Ellie is still talking to him, blowing him kisses, giving him air hugs and keeping his spirit alive.

Almost every day I receive some sort of gift or sign from my dad. For example as I was driving to work on Thursday I was thinking about him. I looked at the car in front of me and the license plate was 416. Maybe it was just a coincidence, but I will take it as a little angel wink. He may not be here in body, but his love is definitely here. My mom believes that when we die, our love stays behind. And this makes sense to me because I believe when you love someone it is on a soul level, and that never goes away.
Do you have a loved one who has passed who you feel is still around?  There are so many little signs from those we love, it could be as simple as a penny left on the ground, a specific animal crosses your path, a special song comes on the radio or the lights flicker when you think about them. People have told me that they don't understand why the woo-woo experiences happen to me, but it's simply because I am always looking. It happens to all of us! It is just a matter of keeping your eyes open :)
As I edited this post Sunday night, I was making dinner, sipping a glass of wine and deleting and rewriting every sentence.. the song "Wish You Were Here" by Pink Floyd came on. You know what is funny? This one reminds me of him too. And when I went to a psychic 3 years ago (no judging!) she told me "your dad loves when you notice he plays songs for you". So there you go. Thanks, dad.
For this post's song, I am choosing "Knocking on Heaven's Door" but the version by Antony and the Johnsons. We love this one because it actually sounds like my big brother Matt's voice. Listen to it, it's pretty awesome.

Knocking On Heaven's Door - Antony and the Johnsons

This Is How We Do It - Down Syndrome Awareness Month

I am not sure why, but every aspect of my life is ruled by song. Today, like many many other days, I was singing Montell Jordan's "This is How We Do It". Because I can't say those words without singing them just like Montell. I wanted to share how we do Down Syndrome Awareness Month, which if you are my friend you are fully aware what Down syndrome is! So I like to call it Down Syndrome "Celebration" Month. Because I'm annoying like that, and we have a lot to celebrate.

Every year as October approaches I try to come up with fun ways to celebrate. In the past I have inundated friends and family on Facebook with various facts about Ds and too many Ellie pics. I've visited the boy's school and read books. Our favorite one to give to the class is 47 Strings. Some other great choices are The Courage to Be Kind and We'll Paint the Octopus Red. We always wear our cute advocacy shirts. There are a ton of wonderful businesses who make Down syndrome awareness shirts, I'll list a few here (please note I am not getting free stuff for saying this!) 
Reeve's Tees (Homies Shirts!)
Gabe the Babe & Co (Advocate, Educate, Celebrate Shirts, 47>46)
Littlest Warrior (Be Kind ASL Shirt, The Lucky Few)

This year I decided it would be fun to do a school visit for all three kids now that Ellie is a Husky like her big bros! And I wanted to show a video in each class instead of reading a book.

First stop was supposed to be Ellie's preschool class, but she was sick! So instead I sent in a copy of 47 Strings as well as the adorable cartoon called Everyone Counts: My Friend Isabelle which I thought helped explain Down syndrome in an easy way for 3 and 4 year olds. It's so cute! I had planned on giving out multi-colored goldfish, reiterating how the fish are all shaped the same but are all beautiful different colors. Just like us, although we are all different, we are still all the same. Those are still sitting in my kitchen, I plan on making a class visit in November.

My friend Cathleen who blogs over at Foursmalls used the concept from the One Page Profile and made an awesome info sheet about her cutie Sam for school! I loved it so much so I decided to make one for Ellie too. Her teacher will send a copy home with each child so their parents can also talk to them about Ellie. Here it is, and below I'll share the template for anyone who would like to use it! If it seems odd that I'm sharing the template, it's because the One Pager received a lot of attention and I have spent the past few months walking people through making their own. I finally figured out an easy way to share the template, as you can see below. I have also updated the One Pager post with the same, if you need a template for that for your IEP, IFSP, Transition Meetings, etc.

Here's the link to the template (save yourself a copy in order to edit, instructions below!)

DS Awareness Month Poster Template

And instructions to save your own copy:

Our first stop was Luke's 3rd Grade class with Ellie in tow. A friend of mine said "so in other words you brought her in like show and tell?" And yes, I did, and it was very impactful for the kids to meet her in person, play with her, read with her, and get to know her. I have one word for this experience... tears. I decided to let my boys choose what we would show to the class, and Luke chose the video "True Colors" by Matty B. His class had already read 47 Strings, so I started off by telling them how Matty B has a sis with Down syndrome just like Luke. Many of the kids knew of Matty B, and were excited to watch the video. Once the video stopped and I turned on the lights, over half of the class was in tears. They were so touched by the message. They ended the visit by singing "If your happy and you know it" and Ellie lead the class. I teared up too many times to count.

In Will's 5th grade class, he asked that we show the video "Just Like You". This one is a longer video but was great for this age group. I started off this presentation by explaining who I was, that it was DS Awareness Month and I introduced Ellie as Will's little sis. I let them watch the video first, and told them they could ask me anything about Down syndrome and that there were no bad questions. These kids could have asked me questions all day, and they had some great thought-provoking questions. For example, one boy asked if Ellie had a baby, if the baby would have Down syndrome. I told them it's a 50/50 chance. Another boy raised his hand and said "so if her baby has Down syndrome and it has a baby, what are it's chances of having Down syndrome?" I probably looked like a deer in the headlights, and Will's teacher joked "that would make you a great grandma!". The kids loved asking "what is a chromosome?", "what is the r-word?", "is Down syndrome contagious?". 

Last year the boys gave their friends something that reminded them of their sis, so Will chose "Extra" gum to represent the extra chromosome and Luke chose "Sweettarts" to represent Ellie. That one makes me giggle because I always say Ellie is like a Sour Patch Kid, first she's sour then she's sweet. Boy is that the truth! So this year I asked again, and they said "something sweet!!!", so we picked Hostess cupcakes and twinkies. Costco has a box of 32 for $6.99 and they are Halloween themed so the kids were totally excited! Sorry teachers.

What I have come to realize in the almost 5 years I've been Ellie's mom, is that Down syndrome is something that you don't understand until you do. Sounds silly, right? But when I first started talking to the kid's classes when Ellie was just a tiny baby, they had no idea what it meant to have Down syndrome. I'm watching first-hand as the kids are growing up, how they now "get it". I walked through that school that day and kids from other classes were yelling "hi Ellie!!" and wanting to talk to her and high five her. Down syndrome isn't scary and these kids love her for who she is. As she enters this school in the future, the kids will all know her already. They will understand why low tone makes it harder for her to hold her pencil, or talk clearly to her friends. But they will also understand that Down syndrome is a part of her and that she is awesome just the way she is.

As I was writing this post Jesse walked by and read the title and sang it just like Montell. So you guessed it, I have to add the song to this post for your listening pleasure, and sorry if it's in your head now! 

This Is How We Do It - Montell Jordan

Quit Shaming Me. A Letter From My Mama Heart

Do you guys remember that Unicorn drink from Starbucks? It was layers of blue and pink topped with whipped cream and sparkly sprinkles. It was pure fatty magical frothy goodness. One Saturday I was checking out at the grocery store with all three kids and the store clerk, a young man probably in his 20's, asked us what we were up to that day. "Oh we are heading to get a Unicorn drink from Starbucks, we are so excited!" I exclaimed. He looked at me in total disgust and said "I would never, ever let my 3 year old drink that, do you realize how much sugar is in those things!?" To which I replied, "Oh I know, but one drink won't hurt them, I'm just being a good mom!" 

"Keep telling yourself that" he replied.

I stared blankly at him, blinking hard.

Keep telling yourself that.

Chip away at my mama heart will ya? Keep chipping.

Just this past week I've had in-depth conversations with my mom, my mom-in-law, and my neighbor (and good friend) about what I call "mom-shaming". It is happening all around me. As if I couldn't second-guess my parenting any more; I'm faced with articles like "Your Kid is a Brat and it's all your Fault", or the article that started off by explaining that suicide rates are up 200% in kids ages 10-14, or mental illness is rampant in our children. Do you know why this is happening? It's all because of us, parents, US! We don't feed our kids nutritious food, they play too many video games, we don't play enough board games with them, we bribe them too much, we coddle them, or because they aren't outside playing enough.

Chip, chip, chip.

Full disclosure. As you know, our girl Ellie has Down syndrome. And there's one particular rule that I break, and I break it hard.
"Avoid using technology during meals, in cars, restaurants, malls"
I dare the author to take Ellie to a baseball game or a restaurant and ask her to sit quietly. I can bring coloring books, toys, snacks, and even a leash (full disclosure, remember?) and this girl will not stay with us. In the world of Down syndrome this is called "bolting" and it's a real thing. So I admit I let her watch her YouTube videos or play games on my phone. 



Chip, chip.

We are lucky to live in Oregon. It is beautiful here, and when it's not raining our kids are out on their bikes, on the trampoline, playing with the neighbors or building forts. Not unlike my childhood, really. And if they are in the house, we are usually relaxing, watching a movie, playing video games or talking about our day. Not unlike my 80's childhood, cough..ahem... Nintendo addict. Because with sports, art, appointments, work, and school, our life can be pretty busy. So I admit we don't eat dinner around the dinner table every single night. Wednesday night? I fed the boys mac-n-cheese with hot dogs in it. I was tired, damn it.

Chip, chip.

So, I've made a decision, I've made a stand in my overly tired mom-brain. I will continue to read the articles. I will! And I'll try to incorporate some of the good nuggets of info into my life. But only in baby steps. I really do appreciate the ideas, like playing a board game every night with the family. But you know what? This is real life. Our oldest has soccer and gets home around 7ish. We then eat a quickie dinner and check backpacks. We may sit and watch a show and then we might even have ice cream (gasp!!!) So board games? They may happen once a week, if that. And on non-sports nights maybe I'll make an effort for us to eat together at the dinner table.... I'll have to clean the clutter off the table first, though.

Moms, promise me, please? As you read those articles, don't beat yourself up over them. Maybe you are doing everything in those lists like me. At the end of the day ask yourself this, are your kids happy? Are they grateful? Are they fed? Clothed? And you know damn well they are loved. You are doing an amazing job. Now take that hand of yours, put it on your back and give it a little pat. You are amazing. 

Oh, you know what? I used that Unicorn drink as bribery for my kids to be good while I grocery shopped.

Chip.

And... they had sold out of the darn Unicorn Frappuccino that day. My kids never even got to experience the fatty frothy elusive goodness.

So maybe I am a good mom, after all.

For this post, I've chosen a song from our Rockin' Mom Retreat Playlist that I get to compile each year. How lucky am I to get to do that?! Anyways, I LOVE this one. Listen to it. And moms, give yourself a break, this is the only time we have - enjoy it.

This is the Only Time We Have - Ryan Miller

How to Make a One Page Profile, Ellie Style

Before I outline how to create your own One Page Profile for your child, I wanted to share with you why I think this concept is so important for our children.

About 5 years ago I attended a learning session on how to create a Person Centered Plan and the One Page Profile. Roberta Dunn, the Founder of FACT was leading the session and it was so eye opening for me. Person Centered Planning is a positive, strengths-based approach to mapping out your child’s future. Your child's team comes together to create strategies to help them be their best self, as well as find solutions for support in the areas where they may be struggling. And as Ellie grows, she will be driving this process of determining her future. 

Roberta explained that this method can be used when your child enters a new grade, moves to a new school, if they are transitioning from Early Intervention into the school system, or even going to a new daycare. In any situation where you want your child's team to have a better understanding about your child this would be the time to use it.

It begins with a Vision Statement. The Vision Statement I used in Ellie's One Pager was courtesy of Laura Buckner. Laura was our keynote speaker at a DSDN Rockin' Moms retreat. I remember there wasn't a dry eye in the house, as Laura explained the vision statement she brought to all of her son's IEP meetings. Her son is now an adult who lives a happy and productive life. She is an amazing advocate and mother. She told us to get out our pens and to write it down, this is it in it's entirety:

We envision Ellie living a life of choice.
We envision her having relationships she finds meaningful.
We envision her spending her days at work and other places that she enjoys and finds productive.
We envision her living with people she chooses to live with in places she chooses to live.

A life of choice, this says a lot doesn't it? I really loved the vision statement and tweaked it a little for her One Pager, she's was only 4 when I first made it after all :) But I plan on editing it as she grows, but it will always remain that we envision Ellie living a life of choice.
I also wanted to share the link to the Person Centered Planning information from FACT. It is a wealth of information and I highly suggest reading it. I poured over many One Pagers to create Ellie's, it's so helpful to see what other parent's are doing.

Another tool that inspired me was the video We All Belong which was created by NWDSA and All Born In. I sent this video to Ellie’s teachers, therapists, and the school Principal. It’s very impactful and I believe will help to reiterate your vision for your child.

And now I will walk you through how to create a One Page Profile for your child. To create Ellie's profile I used a graphic design website called Canva. There are many other templates in there if you don't prefer the one I made. I will list below how to take the existing template I created and edit it to your child's needs. Please reach out if you get stuck or have any questions!

Step 1: Canva finally updated their system to allow for "templates" so no more worrying about making a copy first! WHEW! I have provided the template link HERE. I have also included a white version with black type to help reduce ink wastage if you'd rather have a white one! Find it HERE.

Step 2: A new template will open, you can edit this copy as you please. And every time you log in to Canva it'll be there. So each year you can make a copy and create a new profile and only update what has changed!

Step 3: You can rename your template here:

Step 4: Start with your child’s pic, their adorable face will be looking back at you as you write down all of their amazing strengths!

To add a photo into the photo area, click on the left hand side under “uploads”.

Once you click under “uploads” you’ll see a button for “upload your own images”. Click here and add your child’s photo. From here you can drag and drop the photo into place.

Step 5: Background Color. Click on the left hand side under “background” and choose a color or pattern that you like.

Step 6: If you would like to change the font, highlight the text you'd like to change, then the font box will pop up. Here you can edit the font type as well as size.

Step 7: Edit the text. If you want to change up what the template says, click on the text and a text box will appear. Here you can go in and edit as needed:

Step 8: Are you all finished? Now it’s time to save off your masterpiece so you can print it! Go up to the “download” button and save as either a png or jpg. I have printed both options and they are similar in quality!

Step 9: I always end up saving the copy to my desktop so I can find it easily. I have used a printing service (I uploaded the document directly to the printing site) to make color copies, or just printed on our home color copier.

Step 10: Now you are ready to share with your team! And as I mentioned above, in Canva your template is now saved, so next time you log in you can go to File: Make a Copy and edit your One Pager each year as your child grows! It’s fun changing it up and seeing how your child has grown.

A few helpful tips: Don't edit from a phone. A desktop is your best bet. Also, your internet browser can change the font! I prefer to use Google Chrome.

I always end every blog post with a song. There's just something about this one that fills me with all the feels, like you want to raise your hands up and close your eyes, it's one of my all time faves:
The River - Leon Bridges



Ellie's first day of school - age 3!

As Long As It's Healthy, A 77 Year Old Pregnancy

As I rummaged through the area under the sink, my mom stood next to me nervously fidgeting with her hands. I handed her the Dixie cup and a few moments later we saw two little lines. Pregnant! I cried tears of joy and amazement “I cannot believe I get to experience this with you, mom!” She gently rubbed her belly and said “I think it’s a boy, I can tell by how I feel.” We were giddy and excited like we were sisters. I was then outside and in the distance was a sparkling water tower with bright orange pumpkins at the top. I made a mental note to take photos of the kids there sometime. It was the golden hour and the sun was shining beautifully and the light was perfect. I pulled my mom close to me and we googled “77 year old pregnancy risks”.  The next thing I remember is being startled awake by the sound of my alarm clock. I smiled to myself and thought “oh man I can’t wait to tell my mom about this one”.

That morning I did what I do every day, I called my mom. “Mom, I just had a dream you were pregnant!” She giggled and said “I better go to the casino, maybe it means I’ll meet a guy!” She always makes me laugh. So then we had a whole conversation about stories of women past age 60 having babies, I reminded her to be careful. “I wonder what a 77 year old’s risk of having a Down syndrome pregnancy would be?” we giggled some more. As I explained the random pumpkins and the water tower, she said “OK you know what is weird, I’ve had a reoccurring dream and fear since I was a little girl of water towers.” Her brothers would simply walk by her and say “water tower” and she would cry. Dreams sure are trippy, aren’t they? I wonder what it all means.

Me and my mama

I can tell you exactly why I’ve been dreaming about babies and pregnancy though, it seems that everyone at work is pregnant. The two girls that sit next to me are pregnant and have the cutest little baby bumps. We talk about babies every day. I was talking to one of the girls right before her gender ultrasound. I said “so do you think you’ll have a little sis for your daughter or a baby bro?” She looked at me and said “I don’t care, as long as it’s healthy”. Then I could see her body language shift. She said “but, I mean, if it’s not healthy that is OK too...” I could tell she had one of those “oh crap” moments, like maybe she said the wrong thing to me.

This conversation brought me back to when I was pregnant with Ellie. Every night Jesse and I have a routine of going upstairs and kissing the kids goodnight before we go to sleep. Every single night during my pregnancy with her, I would go kiss my boys and then rub my belly and say a prayer “please Lord bless this baby, and please make sure she is healthy”. I had a rough time throughout my pregnancy and always worried that she wasn’t going to make it. I had bleeding for weeks, gestational diabetes, thyroid problems, and she was in an odd position in the womb to which doctors had no explanation.

My Ellie Belly

After the birth of our girl, I remember crying to my mom. Through tears I said “but mom I prayed every night that she would be healthy.” She looked me straight in the face and said “and she is, honey.”

Ellie with Grandma

I know once you join the Down syndrome club, and you hear other moms saying how all they care about is that their little one is healthy, it can hurt a little. Like they don’t want a baby like yours. But I’ve come to realize that there is nothing wrong with hoping your baby is healthy. One thing we all have in common is that we don’t want our little ones to hurt or suffer. We are protective and love these little beings more than life itself. So “as long as it’s healthy” doesn’t bother me anymore. Because I prayed that our girl was healthy too, and she is, honey. 

Ellie and I

This week's song was one that popped up yesterday on Pandora, and I immediately sent it to my brothers. Yesterday would have been my handsome dad's 80th birthday, so of course I always think he's saying hello by sending me beautiful music to listen to. :)

Timshel - Mumford and Sons

Happy 4th Birthday Ellie

To capture 4 years into a 4 minute video was hard for me, especially since I take sooo many pictures! And do you know what really stood out as I sorted through the hundreds of photos? This. girl. is. so. loved. Wow!

Click the link below to watch the video:

Happy 4th Birthday Ellie

Happy birthday Ellie, our beloved one!